Stop the bus!!!

Stop the bus, I want to get off. Feeling rough again - really rough.  Tired, sore stomach, slurring my words…  I really want to sleep but my stomach is too sore.  I just don’t understand what is going on and why I feel so bad at times.  Docs don’t seem to be able to say what it is and I don’t have a clue.

I have been recording symptoms and rough patches since I started taking warfarin and the only pattern I can see is that when my INR is low I feel worse. Yet I am told I should not experience any symptoms unless I have a clot.  So I went to see the nurse again the other day to get my bloods taken for an INR check because I felt so bad.  Yesterday, I phoned for the results – my INR is now 1.7 and the doctor wants me to take 13mg daily.  So I have to take an extra ½ mg of warfarin every second day.  These small increases don’t seem to be doing very much in bringing my INR up - if anything my warfarin dose is going up and my INR is going down!

It really doesn’t make sense, I am being so careful about the amount of vitamin K I take and it’s hardly anything in comparison to what I used to have. Now I only have a maximum of 20g rocket (arugula) every two or three days and watch the amount of spring onion etc. I eat.  So I have been consistent.  I have been following a paleo diet which keeps me off any processed foods and I am definitely eating much better but I still can’t keep my INR up……….

I actually felt so bad that I have just called to speak to a doctor. I told him how bad I was feeling and asked if I could take Fragmin because it seems to help.  He didn’t know my case so we talked it through - and he said he could get me some Fragmin today.  Hoorah!

2 hours later………….. So here I am sitting with a box of 5 Fragmin injections.  I am about to stab myself in my stomach with one of them and hope that I feel better tomorrow.  Fingers crossed.

Update – yes, Fragmin has got me back on my feet again, more bloods to be taken in a few days