I have been struggling to get an idea of what this blood disorder is about. No-one can tell me why I feel rough much of the time, why I get these panic attacks, I get breathless, exhausted and really painful acid reflux as the doc calls it. So I decided to make an appointment at London Bridge Hospital with Professor Hughes team. Well if anyone should know about this then they should, they discovered this blood disorder.
I haven’t got the confidence to go on such a journey on my own yet so my friend Sarah has agreed to go with me. I just don’t feel happy yet to go on my own or stay somewhere else on my own. Sounds weird especially because a few months ago I was travelling up and down regularly to London and thought nothing of it. Yet here I am now struggling to be on my own.